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Hydrocephalus Awareness

Hello Blog! Happy September! While for many, September symbolize the end of summer and the start of fall, September holds a special place in my heart for another very special reason. September is Hydrocephalus Awareness Month! Like I stated in my introductory post, one of the conditions I suffer from is hydrocephalus.  My Story with Hydrocephalus began before I was born. Three weeks before I was born my parents went in for an ultrasound where they discovered there was something wrong. The doctors weren’t sure what it was. They were referred to a great neurosurgeon who explained what he thought it most likely was. Hydrocephalus.   What is hydrocephalus? Hydrocephalus is a neurological condition that causes an excess of swelling in the brain that is called cerebral spinal fluid (CSF).  Hydrocephalus means that my brain doesn’t control fluid properly and there was an influx of fluid in my brain when I was born causing my head to swell. There  is no cure. No one qu...
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My YouTube Channel

Hi Everyone! I Wanted to share some exciting news with you all. I have just launched my new YouTube Channel  and the first video is live now! I can't wait to see where this new chapter in my life takes me and I am excited you are along for the ride. I am looking forward to sharing tons of interesting content on my channel (as well as my other socials ). Beyond my experience with diabetes and hydrocephalus, I would like to talk about fashion, recipes, book reviews, chit chat, get to know you all, and so much more. I hope you enjoy it.  All the best,  Jules
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Elle and Coach

Hello Blog! Please note portions of this post have been adapted from my mothers blog, Getting Stitched on the Farm. Nearly three years ago I was browsing through shelves of books and movies at my local library when something intriguing caught my eye.  It was a book with white and blue binding. I picked it up off the pile and took a good long look at it. It was a book with a girl on the cover probably about my age and a very adorable regal looking dog (a labrador retriever to be precise). I read the title for the book:  Elle and Coach . So I thought to myself: “Well, isn’t that adorable?” After a minute I then noticed something else that caught my eye about the book. It was the subheading below that I didn’t notice right away. It read: “Diabetes, the fight for my daughter’s life, and the dog that changed everything." I read it again. Yes, it was about   diabetes . I instantly knew that it was fate that I found this book (or was it the book that found me?). I sat d...
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